DisAbilityMaternityCare has been established to provide women with disability and service providers information to assist in supporting them to become mothers. It is established on the premise that all women have the right to establish relationships, have consensual sex, and become mothers should they so choose.
Namira brings to this organisation both her personal and professional experience. As a mother to a daughter with a learning disability, and another family member with an acquired learning disability, both of whom have had a baby, she has personal experience intheir transition to motherhood.
Namira’s professional experience as a midwife and nurse spans over 30 years, working in a range of midwifery models of care. Her career has been based on social justice, working to improve healthcare for mothers and babies in disadvantaged groups. These include young women, and Indigenous women. She has also established projects which particularly focus on community development in women’s health for Indigenous women and women from culturally and linguistically diverse backgrounds.
Namira currently also lectures in midwifery at the University of Newcastle.
In 2013, Namira was awarded by her peers the ‘NSW Midwife of the Year’ (Australian College of Midwives, NSW Branch) for her midwifery work. She has received other awards for presentations on her current doctoral research. This study focuses on maternity care for women with intellectual disability, which has been presented at several conferences. The need and importance of the disAbilityMaternityCare website has developed through her research and experience of caring for women with disability.
This website aims to provide both women with disability, their families or carers, and health/service providers a resource to understand the needs of this group of mothers, and information on providing care for them during their maternity journey.
The orange colour for the website logo has been chosen to reflect the values associated with Harmony Day, which celebrates the diversity of peoples.
“Traditionally, orange signifies social communication and meaningful conversations. It also relates to the freedom of ideas and encouragement of mutual respect”. (Source- https://www.harmony.gov.au/about/)
Our Primary Goals
Promote the concept of inclusion and the rights of women with disability to have a family;
Promote awareness and knowledge of the needs of women with a disability as they journey through pregnancy, birth and early motherhood.
Provide up-to-date information and links to resources to enable health and service providers meet the need of these women;
Presentation at the PANDDA Conference 2014
Presentation at Australian College of Midwives Conference 2015
Presentation at the NSW Midwives Conference 2016